PAPGI minutes of April 26th Teleconference
Minutes of PAPGI Teleconference
Date: 26th Apr 2012
Lai Poh San (Singapore)
Jong Bhak (Korea)
Maude E Phipps (Malaysia)
Lai Ping (NUS)
YY Teo (NUS)
Carmencita Padilla (Philippine Genome Centre)
BP Hoh (UiTM, Malaysia)
Vijira Dissawayake (Sri Lanka)
Chien-Hsiun Chen (Taiwan)
Timothy Ravasi (Saudi Arabia)
Sissades Tongsima (Thailand)
Fahd Al-Mulla (Kuwait)
Objectives of the PAPGI
Committees and roles
- Basic framework
- Agreement and principles to be adhered by members
- Terms and reference
- Data release policy
- Agreement on authorship
IRB and informed consent
Industry solution and providers and possible tie-up/offers
Timeline and action plan
The meeting started at 2.00pm (Singapore time).
The teleconference and discussion was facilitated by YY Teo.
1. Minutes of the last meeting / discussion was revised.
2. Agree that Edison Liu to be the advisor of PAPGI.
3. Samir Disid as the country representative for Nepal.
4. Indonesia representatives has not been responding or showing interest to the consortium.
5. Any country intends to join PAPGI to be finalized by July 2012. Application will go through the steering committee after deadline.
6. BGI shows interest and members agreed to invite BGI as a scientific partner to PAPGI.
Jong will liaise with the key person of BGI – Henry Yang for details.
7. Publication policy
In the spirit of collaboration and transparency, the PAPGI will adopt a "No surprises rule" from now onwards until the launch of the restricted public access of the PAPGI data. This means that, before the PAPGI data is officially available for restricted public access, members of the PAPGI Consortium will be granted privileged access to all the data that is generated as part of the Consortium. However, if the data will be used in a manner that is not directed towards the first Consortial publication, the Steering Committee must be informed of the intended use of the data to avoid unforeseen conflicts between members in the Consortium.
8. TF data storage analysis and informatics analysis.
Jong and Shuhua as co-chairs.
Jong, Shuhua, Sissades & Vinod will organize a bioIT working group.
9. Policy review board
Maude and Poh San as co-chairs.
To include representatives from the middle east countries in the PRB.
PRB acknowledges and recognizes that ethics approval and informed consent procedures for PAPGI participants may vary in different member institutions and countries.
We do not prescribe nor recommend that a single procedure for ethics approval or a single standardized instrument be used.
What we mandate is that each consortium member/group is fully responsible for acquiring their institutional/national ethics approvals and that informed consent is sought from every volunteer whose sample is used for the study.
IRB/Ethics Comm. approvals* (each investigator / institution / country authority)
l Copy of the IRB approval reference code / number kept at NUS & MUSC for PRB records (for each researcher /group)
l Informed consent* (new samples from volunteers & archived samples)
Mandatory and responsibility of each investigator/group
l A copy/copies of a signed and verified IC form to be submitted to co-chairs of PRB-PAPGI for records
l Other mechanisms utilized
10. Steering committee serves as the executive committee.
Comprises at least one member representative from each country in the PAPGI project. Members agreed the SC could have more than one representative from a participating countries like China. The role of SC is to discuss pertinent issues related to the project in order for the project to progress in an efficient and timely fashion. The SC will also be informed of the progress of the project through the representative of each country. When there is a need, members in the SC will be called to discuss issues that arise in the course of the project, and the Co-Chairs of the SC will make an executive decision after the discussion. Fundamentally, the SC, under the leadership of the Co-Chairs, will be responsible for driving the project.
List of members of steering committee is as listed.
11. Data release policy
Restricted access for curated data. Specific IRB approval is needed.
12. Industries solution
Minimum coverage 30 – 50x.
Jong: 30x coverage should provide highly accurate sequence data.
Jong: to discuss/negotiate with different companies on our behalfs for the "Solution/Industry Providers" for possible discounted prices.
Suggested list of industries:
They have been contacted informally. Formal invitation is left. And we will ask for their willingness in participation with their possibility of tech/sponsorship.
Steering committee should prepare a chart
Targeted deadline: Sequence data should be done by early 2013. Pipeline analysis of sequencing data should be setup by by Jong et al.
A meeting will be held in early July 2012 in Monash University Sunway Campus, Kuala Lumpur Malaysia.
1) List of members of Steering Committee, and members of other working groups.
2) SC to come out with a gantt chart
3) Participating members to obtain ethics approval by July 2012.
Meeting adjourned at 4.15pm.
Minutes prepared by:
BP Hoh (UiTM, Malaysia)
Maude Phipps (MUSC, Malaysia)